Patient Resources

Autism Resources

Asperger/Autism Network

Summary:
AANE works with individuals, families, and professionals to help people with Asperger Syndrome or similar autism spectrum profiles build meaningful, connected lives by providing information, education, community, support, and advocacy. (FB, YT)

Website URL:
Asperger/Autism Network Website

Autism Empowerment

Summary:
Autism Empowerment is dedicated to enriching and empowering the lives of youth, adults and families in the Autism and Asperger community

Website URL:
Autism Empowerment Facebook Page

Autism Self Advocacy Network

Summary:
Variety of social media accounts where we share our advocacy initiatives and other information related to disability rights and community.

Website URL:
Autism Self Advocacy Network: Social Media Sites

Autism Speaks

Summary:
Dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.

Website URL:
Autism Speaks Website

Digitability

Summary:
Platform that enables autistic students to develop work ready skills

Website URL:
Digitability Blog

The Mentor Network

Summary:
A national network of local health and human services providers in more than 30 states offering an array of quality, community-based services to adults and children with intellectual and developmental disabilities, brain and spinal cord injuries and other catastrophic injuries and illnesses .

Website URL:
The Mentor Network Website

Allergy Resources

Asthma and Allergy Foundation of America (AAFA)

Summary:
AAFA is dedicated to improving the quality of life for people with asthma and allergic diseases through education, advocacy and research

Website URL:
 AAFA Blog

Itchy Little World

Summary:
Targeted at parents with kids who have allergies. It’s written by Jennifer, mother of two, with guest posts from other bloggers and industry experts. The blog gives day-to-day advice on helping to treat kids with allergies as well as eczema and asthma.

Website URL:
 Itchy Little World Website

One Spot Allergy

Summary:
OnespotTM Allergy Blog is written by Elizabeth Goldenberg, Canada’s best known Allergy Expert & Lawyer. Her blog wins Heathline’s Editor’s Pick Top 10 Allergy Blogs each year, she’s the author of the online anaphylaxis first aid course “First Aid For Anaphylaxis: An Allergic Emergency”, the co-inventor of patentable epinephrine kits that hang on the wall like a defibrillator.

Website URL:
 One Spot Allergy Blog

Cerebral Palsy Resources

Aaronverse

Summary:
Tumblr blog by young man with CP, featured in the NYT

Website URL:
Aaronverse Blog

Candor CP

Summary:
Peer to Peer App for Youth and adults with CP

Website URL:
Candor CP Mobile App

Cerebral Palsy Support Network

Summary:
A not-for-profit organization providing information and support services to people living with cerebral palsy and their families.

Website URL:
Cerebral Palsy Support Network Website

Cerebralpalsy.org

Summary:
Attorney Sponsored Information Website

Website URL:
Cerebral Palsy.org Website

Friendship Circle

Summary:
Friendship Circle of Michigan provides resources to families with special needs, this blog post lists 25 CB resources

Website URL:
Friendship Circle Blogpost

Diabetes Resources

American Youth Understanding Diabetes Abroad

Summary:
Non-profit volunteer-based organization that empowers youth to serve as agents of social change in diabetes communities throughout the world.

Website URL:
American Youth Understanding Diabetes Abroad Website

Six Until Me

Summary:
Blog by Kerri Morrone Sparling who was diagnosed with type 1 diabetes in September of 1986.

Website URL:
Six Until Me Website

Type One Nation

Summary:
Social network for people with type 1 diabetes, their families and friends. The site is created for—and powered by—the type 1 community

Website URL:
Type One Nation Website

DOWN SYNDROME, ID, DD Resources

Best Buddies

Summary:
Best Buddies International is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD)

Website URL:
Best Buddies Website

My Voice- Tap Type or Talk

Summary:
Teen developed app that allows the user to type anything they like and have MyVoice speak it for them.  (IDD)

Website URL:
My Voice- Tap Type or Talk Mobile App Website

Natinoal Down Syndrome Congress

Summary:
A membership-sustained not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, NDSC is a leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of a prenatal diagnosis through adulthood.

Website URL:
Natinoal Down Syndrome Congress Website

National Association for Down Syndrome

Summary:
The oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home. Site provides age-specific resources for ID, DD

Website URL:
National Association for Down Syndrome Website

Epilepsy Resources

EpilepsyU

Summary:
Maintained by the Epilepsy Association of Central Florida, this is an entire social networking site dedicated to the epilepsy community.

Website URL:
EpilepsyU Website Link

Managing Epilepsy Well Network

Summary:
MEW Network members come from U.S. universities, community-based organizations and the Centers for Disease Control and Prevention (CDC). We work together to promote epilepsy self-management research and improve the quality of life for people with epilepsy

Website URL:
Managing Epilepsy Well Network Website

Epilepsy Foundation

Summary:
A national organization dedicated to improving the quality of life of people affected by chronic seizures. Provide a suite of social platforms to connect stakeholders.

Website URL:
Epilepsy Foundation Website

Spina Bifida Resources

SB Tween2Teens Facebook Group

Summary:
Closed Facebook group with 76 members

Website URL:
SB Tween2Teens Facebook Group

Shine Through Youth

Summary:
Shine Through Youth is a Facebook-based support group where young adult Shine members can share experiences and support each other.

Website URL:
Shine Through Youth Facebook Group

Spina Bifida Association

Summary:
The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and support

Website URL:
Spina Bifida Association Website